California: SB 41 – The Genetic Information Privacy Act

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Federal legislation regulating direct-to-consumer genetic testing companies ('DTC Companies') is crucial to protect individual privacy and national security. Unlike insurance companies and health care providers, the federal Health Insurance Portability and Accountability Act of 1996 ('HIPAA'), does not currently regulate DTC Companies' use, storage, disclosure, transfer, or maintenance of the genetic information they collect and analyse at the direct request of consumers...

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